I don’t have Cystic Fibrosis (CF)—an inherited chronic disease that affects the lungs and digestive systems of roughly 30,000 children and adults in the United States alone (70,000 worldwide)—rather my childhood friend, Tom Grotta, who is like an older brother does.
A few years ago a journalist contacted me regarding a story she was writing for a national health magazine. Her assignment was to highlight that a gluten-free diet was more nutritious than a gluten-containing diet and was indeed weight-loss promoting. Immediately a red flag went up but my ears were wide open.
It was the Q and A at one of my Food Solutions events in 2011—Navigating Cancer. A woman, probably in her 30’s with stage 4 cancer, asked, “If I didn’t come to this event, where could I get this kind of information and all of these resources?” For a moment I was speechless (a rarity). I then replied, “I wish I had an answer for you. But I honestly don’t know a place to send you where you can get A-Z information on an illness you are living with.”